Support Vitiligo
Published 2017-09-15
#SupportVitiligo, picturizes my experience with Vitiligo which is commonly called as white patches.
This might be the experiences faced by many people who have Vitiligo or any skin condition which directly impacts their appearance in some or the other way. It might be considered as autoimmune. Most importantly, it’s misinterpreted/stigmatized and that’s one of the reasons I wanted to come up with something which would put forward a message that reaches out to all of you. I have given my best in gathering the facts out of my own experience. Hope it helps.
I did not realize what Vitiligo was and did not take it much seriously as a kid (10yrs old) but I realized it was impacting my self-image in certain ways and definitely the way others looked at me or sympathized with me made me feel very low at times. I personally felt weird and funny by the way people would stare at me and pose questions for which I had no proper answer as a kid. I didn’t take it seriously but what made me serious was it was impacting my family in a certain way. My parents and brother did everything to get me cured. We also visited many religious places and offered prayers. In my family, there has been no family history of Vitiligo The people whom I have known closely were always supportive.
Most of the times, I felt as if I was unnecessarily sympathized and after one point I couldn’t stand sympathy. I soon realized my own worth and it changed my perspective entirely. I started focusing on improving myself in every way possible and adopted new habits like cycling, meditation and swimming which gave me a lot of relaxation though am still a work in progress.
I had unexpected life changes too. I faced rejections, stigma and I faced a very major loss. I lost my brother. What I am trying to say here is that, I have faced certain situations very closely. I felt, when I can survive certain aspects then why should I let anything bother me anyway. We all are blessed in many ways and I decided to focus on what I can do.
I bet you, If Vitiligo wouldn’t have happened to me then I wouldn’t have been this strong of a person which I have become over the years. It gave me an entire new perspective about life and more importantly a beautiful perspective of how I look at myself and everyone around me.
I decided and wanted to self-advocate Vitiligo. This video is very special to me and I have put a lot of effort into this. It has taken me around 3 years to implement. I am thankful to everyone who were part of this.
Co-incidentally, I met my husband just 2 weeks after the completion of the shoot of this video and we got married within the next 6 months. He doesn't have Vitiligo. It was an arranged marriage and this exactly happened when I completely stopped worrying about anything much and my complete focus was finding what I wanted to do in my life. Everything naturally fell into place. I did have my doubts which is very natural but I kept going with a hope that everything is for a reason.
Hope this strikes the right chord with you. This video was shot an year ago.
To add further,
I have undergone many treatments and my parents have tried all sorts of treatments.
To name a few- Phototherapy (Narrowband UVB/UVA) - Partially successful in my case.
Skin Grafting, Punch Grafting, Melanocyte Transplantation and many more treatments including Homeopathy, Ayurveda & Allopathy. Success of most of the treatments depends on an individual and varies from one person to another.
Facts
• Vitiligo affects around 1-2% of the world’s population.
• Vitiligo is often mistaken with Albinism.
• The difference in vitiligo and Leucoderma is only their onset. Vitiligo is self-generated while Leucoderma can occur after a cut, a burn or after allergy from some chemical.
Famous Personalities who had/have vitiligo – Source (Wikipedia)
To name a few, Michael Jackson. (“King of Pop”),Justice P.Sathasivam (23rd Governor of Kerala), Winnie Harlow (Canadian Fashion Model).
“Life will bless you, test you and get you through many experiences just to build you, so that you can fulfill the purpose of your life.”
For Credits, refer the video.
Music |
FairyTale Waltz by Kevin MacLeod is licensed under a Creative Commons Attribution licence (creativecommons.org/licenses/by/4.0/)
Source: incompetech.com/music/royalty-free/index.html?isrc…
Artist: incompetech.com/
Green Leaves by Audionautix is licensed under a Creative Commons Attribution licence (creativecommons.org/licenses/by/4.0/)
Artist: audionautix.com/
Italian Morning by Twin Musicom is licensed under a Creative Commons Attribution licence (creativecommons.org/licenses/by/4.0/)
Artist: www.twinmusicom.org/
This work is licensed under the Creative Commons Attribution-ShareAlike 4.0 International License. To view a copy of this license, visit creativecommons.org/licenses/by-sa/4.0/.
All Comments (21)
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My husband has accepted me.... So I wish u get someone similar who loves I for the way you r
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This made me cry a little because I have this skin condition I get embarrassed to go out and socialise because it.
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People should understand vitiligo as its non contagious and it didn't harm the body. Its not fatal and vitiligo person can lead a normal life. Its just happens due to lack of melanine.
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I have vitiligo since 7 yrs . I m beautiful the way i m . Love yourself n be confident. N stay possitive. There are people who really understands this but there are jerks too. Just ignore them n concentrate on possitive things n people. Love you all. Love myself.
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I also got vitiligo on my face and now whenever people ask me about white patches on my face I simply tell them that these are tattoos. I have little attitude. 😀
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Beautifully done, very informative. The actress did an amazing job in showcasing vitiligo for what it really is. Let us continue to break the chains of stigma.
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I too have it. But if you understand this line. "You have to do the best with what God gave you" everything start changing. Your life attracted by positive things. Negativity goes away.
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Inspirational and awesome
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This so beautiful story, n I like the most, the mother who teach her daughter scars on moon.. Wow such beautiful line.. If people teach their children's good things like this way. I believe world become more beautiful n happy..
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Thanks YouTube for recommending this.... 😍😍it helps people to change their minds.. Liked it.. 😊
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My mother has vigiligo on her hands, feet and back. It started when she was 6 years old. A lot of treatment has been done, it did reduce slightly but recently it is increasing all over again. This has never been a problem for me to accept since I grew up watching her living her life gracefully. This video reminds me of my mom and dad. They had an arranged marriage and my father didn't have any problem with the vitiligo marks. People should be more accepting towards vitiligo as it is only a skin pigmentation problem and nothing serious. The vitiligo donot define a person as there is a lot more to the person than those marks.
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Thanks....the whole team who is just making this video to make sure about it that vitiligo is not just a disease.......its only a negativity in our society in the peoples who never intrested to know about it ,and having no more humanity.....i like and love everyone who have purity in there soul,there minds and there behaviour no matter what there skin or what there color is.....
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Wow really was a amazing story with some of cruel cultures how it goes 😘
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May all children have a mom as insightful as the one at the beginning of this video.
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Very Nice ...i like that when Mom telling her daughter in a simple way that she'll understand ... Hope parent's should educate their children's like this...
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I absolutely love you. Thankyou so much for this motivational video.. It definitely proved to be a motivation for me..
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Very good video. Here is my story I am 24 years old I have vitiligo since I was 12 years old I started doing UVB and PUVA therapy I had some spots on the face and body they are all gone just my hands and feet will need more time. I got engaged 2 weeks ago to a boy whom I have been rejecting for 2 years there were also other people interested in me and they have asked for my hand. Finally, I said yes to my Fiance he is a very good and handsome man. He and his family know everything about me he is a computer science engineer. Don't be sad God kept someone special for you. I believe there will be a cure for vitiligo in just a few years. So chill focus on life.
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Being a doctor i know how important to maintain a positive attitude in these patients. Hats off to you guys, really nice and appreciable video. keep it up
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This gave me a new hope. I was diagnosed with vitiligo when i was 6 years old. Now im 25, completed my masters and BEd, working as a teacher. I had a strong positive insight about my life and goals throughout these years. But when my parents tell me about my marriage, it kills me from inside. I was aware of my skin condition from the childhood, and already had bad perceptions and prejudices about my marriage. I never thought it will happen to me, i conditioned me like this. I was always alone, and i believe that I'm the best when I'm alone. I surrounded myself with positive vibes and motivation. I suppressed the fact of vitiligo and masked myself with over positivity, which eventually turned into narcissism. Now my relationship with my parents is collapsing day by day and my mental health is deteriorating by thinking about marriage. I have pressure from every side, and my life has really become a mess! Im extremely afraid of rejections... I don't know what to do!!!
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Thanks Sushmita for lovely video... Really touching
