Céline Dion on stiff person syndrome battle: ‘My voice will be heard’

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Published 2024-06-11
Music legend Céline Dion sits down for an NBC exclusive interview with TODAY’s Hoda Kotb opening up about her battle with the rare condition, stiff person syndrome, and her determination to share her voice again with the world, which is detailed in her upcoming documentary “I am: Celine Dion.” Dion says “My voice will be heard… not just because I have to or because I need to. It’s because I want to and I miss it.

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All Comments (21)
  • @TODAY
    You can watch Céline Dion's full interview with Hoda Kotb on June 11 at 10 p.m. ET on NBC. "I Am: Celine Dion," will be released on Amazon Prime Video on June 25.
  • I love that she looks like a person of her age. No ridiculous surgeries, no Botox, no fillers. ❤️
  • @Splurge24
    "I'm going to go back on stage even if I have to crawl" ... what. a. legend.
  • @religionmusic1
    This woman is one in a million. She’s, probably, the best voice in the world. A massive star, and She’s always soooooo polite and kind.
  • @thomasmilan1691
    That snippet of her singing. Her magical voice is still there. We will always wait for her.
  • @MistymeQueen
    Who else gets CHILLS when Celine sings?? She's so powerful !!
  • @elianaalzate03
    "It's because I want to, and I miss it." Breathtaking words.
  • @JustNicole6400
    She could’ve hidden away and retired. But she spoke out and told her story about this disease 😭 I love this woman
  • @jaradaniels9289
    Us fans will never leave this woman. I love Celine since I was 10 now 42. She's an amazing human.
  • "Lying to the people, who got me where I am now". What a humble and beautiful person she is, the true inspiration for everyone 💞
  • “My fans accepted my invitation”, "I'm going to go back on stage even if I have to crawl".... One in a million woman! We are rooting for you and will wait as long as you need!!! we love you xoxoxo
  • @chilo8187
    I love that Celine still looks like herself.
  • @themurrrr
    Celine is a diva with humility. Those two things sound like they could not coexist in one person, but you can clearly see, in her, they do.
  • @jaycastro07
    As a hardcore Celine fan, this interview is like a fresh start for her after battling some difficult challenges in her life. She's resilient, a true survivor and a hero not only for herself but mostly for the people who love her music and adore her life as a person.
  • @jennyh7785
    “My fans accepted my invitation.” What a beautiful, humble gem of a human being. ❤
  • @shaggyreaper
    I juat heard her at the Olympics opening ceremony. I couldn't stop crying. She is an inspiration and this performance is her legacy.
  • @itssteven4184
    So, she is dealing with this disease since her Taking Chances era?? It was 16 years ago. Despite all that she still gave her best performance and her Taking Chances tour are considered as one the most successful tour too. It's totally insane....
  • This is the definition of bravery. Being brave does not mean you are not afraid. Bravery is not the absence of fear. It is persevering despite your fears. YOU GO GIRL! Thank you.