Why are Men Diagnosed with hEDS Less Often than Women?
Publicado 2024-02-26
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Todos los comentarios (7)
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A special thank you to all of my male viewers with EDS! I see you and I appreciate your support!
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I am a 21 yo cis male recently diagnosed with Heds after years of symptoms. We do exist!!
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I have Arthochalisa Ehlers Danlos Syndrome. I'm the only member in my family diagnosed on either side. I was finally diagnosed in St Louis Missouri 4 yrs ago this past August. It was always thought that I had Marphan's Syndrome. But I was born with bilateral hip dysplasia
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I didn't see the study myself but someone quoted a study in another comment section that women at around puberty get stretchier tendons so they can open up more to give birth. This leads to more hypermobility.
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From a males perspective, I really see these as the biggest factors: 1) Men go to the doctor less. The majority of males regularly seeing a doctor are children and seniors. During/after puberty our female counterparts are generally being taught the importance of health and going to the doctor. We're kind of told the opposite. Not only are we told to neglect our pain unless something is actually broken but we're also told by doctors that we have no reason to see them. 2) The second reason, I'd call rational bias. We normally have a rational and logical reason for why we think we have "x" pain (not saying females don't) and because of this we don't seek a larger reason. Ex: Repeatedly dislocating and subluxating my shoulder at football practice made sense because.... football. The possibility of something more than that never crossed my mind. Then once you reach your 20s, we're told it's supposed to hurt. So again, pain was rationalized and normalized. The easiest way I think I can explain it, is that all of the gaslighting and misdirection that women experience at the doctor, men were told as kids and therefore we generally just avoid the step of the doctor having to do it because by a certain age, we just do it ourselves. There's a few more reasons but I already feel like I've rambled enough and I'm pretty sure I've worded this poorly.
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That’s weird, Does men get Dx with Classical EDS? Or is it mainly just women? True, my dad HATED going to the doctor.
