WE’VE BEEN WAITING MONTHS FOR THIS…(unpleasant news)

2024-07-07に共有
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Good morning Beautiful People,
We have been waiting months to know the results of Luca's MRI's and unfortunately we don't have good news...
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Sara, Luca and Luce

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コメント (21)
  • As someone who has had spinal fluid leaks myself from a spinal tap, and I’m also a nurse, it is best to have your spinal leak repaired because if you don’t you are at an increased risk of infection due to the opening. I also have a rare disease called idiopathic Intacranial hypertension(means the cerebral spinal fluid pressure is too high, that makes leaks more likely to happen. Go to Germany where they will be better able to treat your condition. If I were in your shoes that is what I would recommend. Sending love and prayers to you beautiful people from the USA 🇺🇸.
  • Luca, I am so sorry to learn of your medical news. Luca, go to Germany and see what this doctor has to say. Give it some consideration. Luce is so precious. Daddy Claudio! Nice to see you looking so well. Sara, you are so beautiful. I'm glad you are better.
  • @BettysBuzz
    Getting an expert opinion in Germany seems to make the most sense. At least then you can make a truly informed decision. Praying for you!♥️
  • People from all over the world are praying for you, Luca. May our Heavenly Father wrap his arms around you and give you strength and clarity in order for you to make the best health decision. You are such a beautiful and loving family and deserve the best of what life has to offer❤
  • My spouse had an episode with his multiple sclerosis while we were on our honeymoon in Germany, it turned out to be the best thing that could've happened because the doctors there changed his quality of life dramatically. We ended up having more precious time together because of them, so seeing another specialist in that field can be life changing. ❤
  • We have been holding our breath for you about your latest results. If there is a surgeon in Germany that is an expert with your illness, I would personally go see him. You need to check out all options available to you and Germany has some of the top surgeons in the world. You’re so young with a beautiful family and life ahead of you. You will overcome this illness 🙏🤗💕 We love you all ❤
  • My niece was treated at Cedar Sinai by Dr. Wouter Schievink who is a Dutch doctor that specializes in CSF leaks. If you want to connect with her directly please let me know so I can get her permission. We all want resolution for a health issue and just so you know, my niece is doing well, still running and living an active life (in her early 40’s).
  • My son developed double vision a few years ago after a flight. He had to wear special lens and had little hope of a it being cured after brain scans ect. But s surgeon arrived in our city who could operate and rejoin the nerve . He went for it after a year of struggling to see . It worked out fine , medical breakthroughs happen all the time. Please do not feel as though it can't be fixed in the near future ❤
  • The Germany option sounds like the best option to me. Personally, I would not do anything strenuous until after you are well. Just walking and basically staying active without any physical stress. I would call Germany right away to set up an appointment just in case there is a long wait time. You can always cancel it if you should change your mind. ❤ I think doing nothing is the worst option. It’s always the worst option unless something can heal without doing anything. Whatever you decide, keep smiling and believing that you will get well. On July 11, it will be 10 years since I walked away from my deathbed. I was dying of stage four metastatic melanoma all throughout my body. A psychic dream 😴 provided me with a natural cure, which led me back to excellent health. Once you are well, you can get your body back in shape, no problem, workout, etc., no need to hurry to do that now. Our bodies are very resilient at any age. You are too young and in good enough physical shape to worry about falling apart or looking bad from a lack of exercise 😉 ❤ Always look to the future and do what you need to do today to create the future you choose.
  • @pkmagic
    Retired interventional radiology nurse opinion. 1. Schedule a consultation in Germany. 2. Explore the physical activity tolerance with a plan to get another blood patch, if needed. I would NOT allow surgery at this time or possibly forever.
  • I adored my two children, and relished every moment of their growing up (they are 35 & 39 now), and I can truly say that Luca and Sara love Luce so very very much. That child is taken care of wonderfully. I loved the "spa treatment" that they had on the lounge chair. Sara talking to Luce as though she were a client at a spa:). So very sorry that the news for Luca was not as good as everyone had hoped. But not all is lost, if it were me, I would go to Germany and at least see what the doctor has to say. I would not do the procedure he has had done twice before. But again of course, it is his life and he must do as he sees fit and is comfortable with. I wish you both a VERY VERY LONG and HEALTHY life, enjoying every moment with Luce. Such a lovely family.
  • Mayo in Rochester Minnesota in the United States is ranked 1 in the world Luca for your illness. They also have an international office to assist patients from out of state. Hope this helps you with your decision
  • That Luce, the cutest little girl on internet, she is sooo adorable🌻
  • @oykaik
    At 4:21 it made me smile and tear up when Claudio reached over to touch Luca. Be well, guys! We love you!
  • @Dan-xx5jq
    I don't know if Luca is aware that drinking cold caffeined drinks was recommended by my doctor when i had a CSF leak and i would get some terrible headaches. So i feel for Luca, as the headaches are no fun. My leak was caused after a spinal tab was done when i had GBS. Drinking ice cold caffeined Coke or Pepsi helped so much with the painful headaches. But you do need to drink at least 2 or 3 cans at one time. But they worked so well for the headaches and almost immediately they would be completely gone. I did have a second operation to seal the leak and it was successful. That was over 10 years ago. Of course for me i never fully recovered from the GBS. But the leak was stopped, i just don't know why it didn't seal the first time. But the second operation was successful. i do remember being very concerned about the future and was sent to a different doctor/surgeon. I was told that he was one of the best. So i think it is important to see someone who knows what they are doing, and that are experienced with it. i do think your best option is in Germany with an experienced person. And I have only heard very good things about health care in Germany. Of course this is your decision to make. i do want to offer you hope that with the right surgeon it can make a huge difference. If you heard that the doctor in Germany is great, i would not waste time and just go to Germany as soon as you can. But this is your decision to make after talking to different people. If you can check with that doctor's office in Germany if they could give you contacts of patients that were successfully treated with him, and ask them for their advise, it will elevate any fears and anxiety you may feel. i hope i didn't sound to pushy but i just want the best for you guys. Sometimes there are support groups out there that have people willing to help with information and how to have a successful outcome. What ever decision you make for yourself and your family is okay with us. We just want you guys to beat this and we can then enjoy watching videos on olive production etc. Take care.
  • Claudio, Prayers for a healthy recovery. Love your plans for enjoying life! From a Claudia! (married to Brian who is a miracle life---was sent home to die in Jan 2019, and still here. He is dealing with chemo, but he believes in healing. He only had a 2% chance of making it 5 years after his initial miracle in 2019). No matter what you and your family go through, hold on to faith in Jesus; he will carry you every step. Prayers for Luca, Sarah, and Luce.
  • Hi Luca, I also had a CFS leak from having a Miligram Catscan. I had it for 3.5 weeks prior to surgery and then after surgery. Because it was a few levels above the herniated disc I was having surgery on (L5S1), my surgeon didn't see the leak while fixing the herniation. One week after surgery, the CSF leak started leaking out the surgery site. I was then put in hospital for 3 weeks where they inserted a tube above where the leak was and the CSF fluid drained into a bottle that sat on the floor. He explained that they didn't want the fluid moving where the hole was in hopes the hole would heal it self with not having any movement of fluid around the flap of the hole. We are always making CSF fluid but I have to say it was not pleasant to have this done. I experienced the worst headache I've ever had, but thankfully the hole healed over. The headache was gone within a half hour of removing the drain. I apologize for this lengthy comment, but wanted to let you know how they got rid of the CSF leak I had. I pray you get through this very soon.
  • @srigging
    Most importantly, for a healthy life & continued recovery Luca, you have a wonderful home in Sicily, a loving family & friends & strong faith. This is a great part of healing & managing an illness. I also have a long-term illness requiring upcoming Hip & knee surgeries ( Osteoarthritis) & find these amazing gifts are soothing blessings. PLUS...you have the gorgeous sea & your land to soothe your soul ❤ Viewers enjoy your weekly vlogs & we will always support you. ❤🙏🌟