What is Arthrochalasia Ehlers-Danlos Syndrome?

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2024-05-20に共有

In this video, I stray away from my usual hEDS content to talk about Arthrochalasia EDS (aEDS). This is part of a rarer subtype series where I make a video dedicated to each of the 10 rarer subtypes of EDS.

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コメント (6)

@ehlersdanlosandi 2ヶ月前

Do you or anyone you know have aEDS? How and when were you diagnosed?
@stephenblonder9634 2ヶ月前

Yes I am a 48 yr old male with Arthochalisa Ehlers Danlos. How ever I am the only person in our family from either Mother's or Father's side that has it. My brother whom is in U.S. Military doesn't have it or any symptoms of it. Thank u again for making these videos. Stephen Blonder from Middle Tennessee
@kristilay8280 1ヶ月前

Yes... I think my daughter might! She had bilateral subluxation of her hips and had major surgery on both at the age of 3. It's been quite a challenge for her and as a mom I feel helpless to help her. 🙏🏼
@shannongreenwell1278 2ヶ月前

My friend Shannon has aEDS, and she is trying to take care of her son who has Gillian Barre syndrome.
@Flipout4Chris 1ヶ月前

Please don’t reinforce double jointed as medical terminology. It’s a poor misnomer for hyper mobility. To be double jointed that would require additional joints. Love your content otherwise.